Bioethical Mediators: The Role of Medical Nurses in Navigating Genomic Ethics.

  • Norah Hussain Hassan Hudani
Keywords: Genomic Medicine, Genomic Ethics, Medical Nurses, Patient Advocacy, Informed Consent, Genetic Testing, Data Privacy, Confidentiality, Bioethical Mediators, Equity in Healthcare, Genetic Counseling, Personalized Medicine, Psychosocial Impacts, Ethical Dilemmas, Familial Implications, Cultural Sensitivity, Gene Editing, CRISPR Technology, Direct.to.Consumer Genetic Testing, Rare Diseases, Pharmacogenomics, Genetic Discrimination, Interdisciplinary Collaboration, Nursing Education, Policy Advocacy, Patient.Centered Care, Holistic Nursing Practice, Global Genomic Standards.

Abstract

The integration of genomics into modern medicine has revolutionized healthcare, offering unprecedented opportunities for personalized treatment and disease prevention. However, these advancements bring forth complex ethical challenges, including privacy concerns, informed consent, equitable access, and the psychosocial implications of genetic information. Medical nurses, as patient.centered caregivers, educators, and ethical mediators, play a pivotal role in addressing these challenges. Positioned at the intersection of clinical practice and patient advocacy, nurses are uniquely equipped to navigate the ethical landscape of genomic medicine.

This article explores the evolving role of nurses in genomic ethics, emphasizing their contribution to fostering informed decision.making, ensuring confidentiality of genomic data, and promoting equitable access to genetic services. By providing psychosocial support, advocating for culturally sensitive care, and collaborating in interdisciplinary teams, nurses bridge the gap between scientific advancements and ethical considerations.

We highlight key ethical dilemmas in genomic medicine, including the disclosure of incidental findings, managing familial implications of genetic data, and addressing disparities in access to genetic testing. Through case studies, we illustrate the practical challenges nurses face and the strategies they employ to resolve them.

The article advocates for specialized bioethical training and robust institutional support to empower nurses in their role as bioethical mediators. By enhancing their genomic literacy and ethical acumen, nurses can ensure that the benefits of genomic medicine are realized within a framework of ethical integrity, patient autonomy, and equity. Ultimately, the involvement of nurses in navigating genomic ethics is indispensable to achieving a holistic, patient.centered approach to personalized healthcare.

Author Biography

Norah Hussain Hassan Hudani

Shekha Ali Jubran Khafy, Sada Saeed Abdulla Alghamdi, Anhar Metwakel Yahya Mahdi, Salwa Yahia Ibrahim Magrashy, Aysha Ahamad Abdullah. Najai, Amani Esmail Abdu Mahdi, Mohammed Ali Mohammed Aldarbi, Mona Ali Ahmed Hakami, Ibrahem Mansor Ali Tawashi, Hanan Yehia Mohammed Qasem, Hamidah Hassan Mohammad Kamel, Ashwag Ibrahim Abudu Kamili, Alaa Ahmed Hakami, Huda Aali Hathal Almuqati

Published
2024-02-04
Issue
Volume 2024
Section
Regular Issue

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